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The Ethics of Medical Data Donation

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Book Series: Philosophical Studies Series ISBN: 9783030043636 Year: Pages: 198 DOI: 10.1007/978-3-030-04363-6 Language: English
Publisher: Springer Nature
Subject: Medicine (General) --- Economics --- Philosophy
Added to DOAB on : 2020-02-04 11:21:16
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This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one’s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes.

Humanities World Report 2015

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ISBN: 9781137500274 9781137500281 Year: Pages: 215 DOI: 10.1057/9781137500281 Language: English
Publisher: Palgrave Macmillan
Subject: Languages and Literatures
Added to DOAB on : 2015-12-18 11:50:51
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This book is open access under a CC BY license. The first of its kind, this 'Report' gives an overview of the humanities worldwide. Published as an Open Access title and based on an extensive literature review and enlightening interviews conducted with 90 humanities scholars across 40 countries, the book offers a first step in attempting to assess the state of the humanities globally. Its topics include the nature and value of the humanities, the challenge of globalisation, the opportunities offered by the digital humanities, variations in funding patterns around the world, and the interaction between humanities and society. Despite the stereotypical view of humanists as scholars locked away in their ivory towers, the picture that emerges from this report is that they are deeply committed to the social value of their work and appreciate the long-term importance it has for addressing global challenges. The report will be of interest not only to researchers and students in the humanities themselves, but also to administrators and funders.

Understanding and Supporting ‘Families with Complex Needs’

ISBN: 9783038421597 9783038421603 Year: Pages: 214 Language: English
Publisher: MDPI - Multidisciplinary Digital Publishing Institute
Added to DOAB on : 2016-06-03 11:06:11
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Promoting Active Citizenship: Markets and Choice in Scandinavian Welfare

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ISBN: 9783319553801 9783319553818 Year: Pages: 325 DOI: https://doi.org/10.1007/978-3-319-55381-8 Language: English
Publisher: Palgrave Macmillan
Subject: Sociology
Added to DOAB on : 2017-11-23 18:35:10
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This book analyses the considerable variation in the shares of private provision for core services in education, health and social services, in the Scandinavian countries.The chapters compare countries, service areas, and the for-profit, non-profit and public sectors. Each focuses on different levels of change: the mix of welfare providers, national laws and regulations, governance in municipalities, nursing homes and schools, and finally, the consequences experienced by the users of the services. The authors ask which combinations of governance structures, service sector providers, and user choice give the best results for active citizenship. Promoting Active Citizenship will be of interest to students and scholars across a range of disciplines, including Public Administration and Management, Non-Profit Management, Social Policy, Innovation in Public Service, Social Care and Education and School Research.

Social Dynamics in Swiss Society

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Book Series: Life Course Research and Social Policies ISBN: 9783319895574 Year: Pages: 253 DOI: 10.1007/978-3-319-89557-4 Language: English
Publisher: Springer Nature
Subject: Political Science --- Sociology --- Social Sciences
Added to DOAB on : 2020-02-04 11:21:19
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Using longitudinal data from the Swiss Household Panel to zoom in on continuity and change in the life course, this open access book describes how the lives of the Swiss population have changed in terms of health, family circumstances, work, political participation, and migration over the last sixteen years. What are the different trajectories in terms of mobility, health, wealth, and family constellations? What are the drivers behind all these changes over time and in the life course? And what are the implications for inequality in society and for social policy? The Swiss Household Panel is a unique ongoing longitudinal survey that has followed a large sample of Swiss households since 1999. The data provide the rare opportunity to go beyond a snapshot of contemporary Swiss society and give insight into the processes in people’s lives and in society that lie behind recent developments. ; This open access book provides an unique insight into the processes in people's lives and society Based on unique longitudinal data spanning 16 years (1999-2014) Contains several cross-national comparisons.

New Frontiers in Social Innovation Research

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ISBN: 9781137549532 9781137506801 Year: Pages: 267 DOI: 10.1057/9781137506801 Language: English
Publisher: Palgrave Macmillan
Subject: Sociology
Added to DOAB on : 2015-12-16 17:55:47
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This book is open access under a CC BY license. Interest in social innovation continues to rise, from governments setting up social innovation 'labs' to large corporations developing social innovation strategies. Yet theory lags behind practice, and this hampers our ability to understand social innovation and make the most of its potential. This collection brings together work by leading social innovation researchers globally, exploring the practice and process of researching social innovation, its nature and effects. Combining theoretical chapters and empirical studies, it shows how social innovation is blurring traditional boundaries between the market, the state and civil society, thereby developing new forms of services, relationships and collaborations. It takes a critical perspective, analyzing potential downsides of social innovation that often remain unexplored or are glossed over, yet concludes with a powerful vision of the potential for social innovation to transform society. It aims to be a valuable resource for students and researchers, as well as policymakers and others supporting and leading social innovation.

Child Protection in England, 1960–2000

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Book Series: Palgrave Studies in the History of Childhood ISBN: 9783319947181 Year: Pages: 215 DOI: 10.1007/978-3-319-94718-1 Language: English
Publisher: Springer Nature
Subject: Political Science --- Social Sciences --- History
Added to DOAB on : 2020-02-04 11:21:06
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History; Social history; Great Britain—History; Europe—History—1492-; Social policy; Childhood; Adolescence

Swiss Public Administration

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Book Series: Governance and Public Management ISBN: 9783319923819 Year: Pages: 384 DOI: 10.1007/978-3-319-92381-9 Language: English
Publisher: Springer Nature
Subject: Economics --- Political Science
Added to DOAB on : 2020-02-05 11:21:19
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Swiss citizens approve of their government and the way democracy is practiced; they trust the authorities and are satisfied with the range of services Swiss governments provide. This is quite unusual when compared to other countries. This open access book provides insight into the organization and the functioning of the Swiss state. It claims that, beyond politics, institutions and public administration, there are other factors which make a country successful. The authors argue that Switzerland is an interesting case, from a theoretical, scientific and a more practice-oriented perspective. While confronted with the same challenges as other countries, Switzerland offers different solutions, some of which work astonishingly well.

Human Rights in Child Protection

Authors: ---
ISBN: 9783319948003 Year: Pages: 258 DOI: 10.1007/978-3-319-94800-3 Language: English
Publisher: Springer Nature
Subject: Law --- Political Science --- Social Sciences --- Social and Public Welfare
Added to DOAB on : 2020-02-05 11:21:14
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This open access book critically explores what child protection policy and professional practice would mean if practice was grounded in human rights standards. This book inspires a new direction in child protection research – one that critically assesses child protection policy and professional practice with regard to human rights in general, and the rights of the child in particular. Each chapter author seeks to approach the rights of the child from their own academic field of interest and through a comparative lens, making the research relevant across nation-state practices. The book is split into five parts to focus on the most important aspects of child protection. The first part explains the origins, aim, and scope of the book; the second part explores aspects of professionalism and organization through law and policy; and the third part discusses several key issues in child protection and professional practice in depth. The fourth part discusses selected areas of importance to child protection practices (low-impact in-house measures, public care in residential care and foster care respectively) and the fifth part provides an analytical summary of the book. Overall, it contributes to the present need for a more comprehensive academic debate regarding the rights of the child, and the supranational perspective this brings to child protection policy and practice across and within nation-states.

West African Youth Challenges and Opportunity Pathways

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Book Series: Gender and Cultural Studies in Africa and the Diaspora ISBN: 9783030210922 Year: Pages: 271 DOI: 10.1007/978-3-030-21092-2 Language: English
Publisher: Springer Nature
Subject: Economics --- Political Science --- Social Sciences
Added to DOAB on : 2020-02-05 11:21:18
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This open-access edited collection, focusing on Ghana and Nigeria, offers a transatlantic, transnational exploration of barriers that threaten the wellbeing of West African youth—ranging from Black immigrant youth in the American city of Newark, New Jersey, to students in Almajiri Islamic schools in Northern Nigeria. Incorporating themes of migration, vulnerability, and agency and aspirations, the book conveys the resilience of African youth transitioning toward adulthood in a world of structural inequality. It thus crosses the academic divide between Youth Studies and African Studies, while challenging conventional framings of Black youth as deficient and deviant—positing instead their individual and collective creativity and assets. The contributors employ different methodological approaches, including field research and autoethnography, from varying multidisciplinary and practitioner perspectives.

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